We have checked for you the most suitable COPD online support groups. A summary table is available below.
Just a reminder of what you need to pay attention for before joining a peer support platform :
- Is there a group entry charter ? A charter establishes rules on how to act and publish in a private group discussion, e.g.: what content is allowed to be published or not. This avoids ads, inappropriate comments, fake profiles, and sales of “miracle” products. Each charter is specific to the group, it is the administrators/moderators of the groups who create it.
- Is there a moderator on the platform ? A moderator is someone who filters spam posts, fake news, warns or excludes group members with inappropriate comments.
- Is it possible to interact anonymously ? Anonymity can be very important for some members on these kind of platforms, so that each member feels free to post or ask their questions without being judged by anyone.
- How big is the community ? The size of the community also plays an important role. The bigger is the community, the faster the answers will be.
We have checked for you the most suitable COPD online support groups. A summary table is available below
| Link | Language | Entry charter | Anonimity | Moderator | Size of community | In connection with an association |
|---|---|---|---|---|---|---|
| BPCO ou Respirons à Pleins Poumons ! #RAPP | Facebook | French |  | | | 2,4k |  |
| France BPCO – Forum BPCO, Pathologies Respiratoires | Facebook | French | | | | 3k | |
| Lung, COPD And Health Examiner | Facebook | English | | | | 18,6k | |
| COPD Information and Support | Facebook | English | | | | 16,5k | |
| Positieve COPD groep | Dutch | | | | 164 | |
| COPD-Luchtgenoten | Dutch | | | | 5,6k | |
Tips to integrate in an online support group:
- Take the time to read the group rules: Before joining a group, it is important to understand the rules and expectations of the group. Be sure to read the group guidelines carefully to familiarize yourself with how the group works.
- Ask questions: Feel free to ask questions or seek advice from other group members. This can help you get your concerns answered and better understand other members’ experiences.
- Share your own experiences: By sharing your own experiences, you can help other group members feel understood and find support. It can also help you connect with others who are going through similar situations.
- Introduce yourself: When you join a group, feel free to introduce yourself and share a bit about yourself. This can help group members get to know and welcome you better.
- Be respectful: Make sure you are respectful and caring towards the other members of the group. Avoid negative comments or personal criticism and treat other members with kindness and compassion